Immunolines is a collaborative effort of clinical and research departments. We provide an overview of the available data‑biobanks in the UMCG from auto-immune and auto-inflammatory diseases together called IMID (Immune Mediated Inflammatory Diseases)...
IMMUNOLINES - SLE - DAiRE
Systemic Lupus Erythematos Database - Dutch Autoimmune REgistry...
Description
Prospective cohort of SLE patients in the outpatient clinic of UMCG. Yearly collection of clinical and laboratory variables. Furthermore extra blood and urine is sampled. At last patients are asked to fill in SF36 (Quality of life)...
General Design
- Type
- Biobank, Cohort study
- Cohort type
- Clinical cohort
- Data collection type
- Prospective
- Design
- Longitudinal
- Design description
- Prospective cohort of SLE patients in the outpatient clinic of UMCG. Yearly collection of clinical and laboratory variables. Furthermore extra blood and urine is sampled. At last patients are asked to fill in SF36 (Quality of life)
- Start/End data collection
- 2012 (ongoing)
- PID
- https://doi.org/10.34760/65266fcea3c91
Population
- Countries
- Netherlands (the)
- Number of participants
- 220
- Number of participants with samples
- 220
- Population age groups
- Adult (18+ years)
- Main medical condition
- XIII Diseases of the musculoskeletal system and connective tissue
- M30-M36 Systemic connective tissue disorders
- M32 Systemic lupus erythematosus
- M32.1 Systemic lupus erythematosus with organ or system involvement
- ORPHAcodes
- Systemic lupus erythematosus
- Other inclusion criteria
- Fulfilling the SLICC or EULAR/ACR criteria of SLE
Organisations
Lead organisations
- University Medical Center Groningen (UMCG)Netherlands (the)https://www.umcg.nl
Contributors
- J (Hannie) Westrajohanna.westra@umcg.nl
Available Data & Samples
Data categories
- Biological samples
- Medical records
- Physiological/Biochemical measurements
Sample categories
- Blood
- Plasma
- Serum
- Cells
- Leukocytes, Mononuclear
- Fluids and Secretions
- Urine
- Urine, random
Areas of information
- Medication and supplements
- Medication and supplement intake
- Physical measures and assessments
- Physical characteristics
- Anthropometry
- Circulation and respiration
- Laboratory measures
- Hematology
- Biochemistry
- Immunology
Subpopulations
List of subpopulations for this resource...
| Name | Description | Number of participants | |
|---|---|---|---|
No results for current selection |
Collection events
List of collection events defined for this resource...
| Name | Description | Participants | Start end year | |
|---|---|---|---|---|
No results for current selection |
Networks
Part of networks...
Access conditions
via contact person...
- Data access conditions
- disease specific research
- Data access fee
- false