Immunolines is a collaborative effort of clinical and research departments. We provide an overview of the available data‑biobanks in the UMCG from auto-immune and auto-inflammatory diseases together called IMID (Immune Mediated Inflammatory Diseases)...
IMMUNOLINES - RESULT
REgistry of Sjögren syndrome in UMCG: a LongiTudinal study...
Description
The Registry of Sjögren syndrome in Umcg – LongiTidunal (RESULT) cohort is an ongoing prospective longitudinal observational cohort study. 400 patients are included between 2015-2023 and followed for 10 years. The primary aim is to identify biomarker...
General Design
- Type
- Biobank, Cohort study
- Cohort type
- Clinical cohort
- Design
- Longitudinal
- Design description
- prospective longitudinal observational cohort study
- Start/End data collection
- 2015 (ongoing)
- PID
- https://doi.org/10.34760/65266dd3503ac
Population
- Countries
- Netherlands (the)
- Number of participants
- 400
- Number of participants with samples
- 400
- Population age groups
- Adult (18+ years)
- Main medical condition
- XIII Diseases of the musculoskeletal system and connective tissue
- M30-M36 Systemic connective tissue disorders
- M35.0 Other systemic involvement of connective tissue - Sicca syndrome [Sjögren]
- Other inclusion criteria
- Age 18 years or older, confirmed diagnosis of pSS according to the AECG and/or ACR classification criteria or probable pSS according to predefined criteria.
Organisations
Lead organisations
- University Medical Center Groningen (UMCG)Netherlands (the)https://www.umcg.nl
Contributors
Available Data & Samples
Data categories
- Biological samples
- Survey data
- Imaging data
- Medical records
- Omics
- Genomics
- Transcriptomics
Sample categories
- Blood
- Blood (whole)
- Blood Buffy Coat
- Serum
- Cells
- Leukocytes, Mononuclear
- Fluids and Secretions
- Saliva
- Tears
- Genetic material
- DNA
- RNA
- Tissue (FFPE)
- Digestive System - Tissue (FFPE)
- Salivary Glands - Tissue (FFPE)
Areas of information
- Socio-demographic and economic characteristics
- Age/birthdate
- Sex/gender
- Lifestyle and behaviours
- Tobacco
- Physical activity
- Perception of health, quality of life, development and functional limitations
- Quality of life
- Medication and supplements
- Medication and supplement intake
- Death
- Vital status
- Physical measures and assessments
- Physical characteristics
- Laboratory measures
- Immunology
- Histology
- Other laboratory measures
- Administrative information
- Identifiers
- Date and time-related information
- Questionnaire and interview-related information
- Physical and cognitive measure and biosample-related information
- Data and sample collection center-related information
Subpopulations
List of subpopulations for this resource...
| Name | Description | Number of participants | |
|---|---|---|---|
No results for current selection |
Collection events
List of collection events defined for this resource...
| Name | Description | Participants | Start end year | |
|---|---|---|---|---|
No results for current selection |
Networks
Part of networks...
Access conditions
- Data access conditions
- disease specific research