Pulmolines - Severe COPD databank
Pulmolines - Severe COPD databank
Description
University Medical Center Groningen is a center of expertise for severe COPD. Each year, approximately 250 patients with severe COPD are referred for a second opinion on bronchoscopic intervention or respiratory failure. These visits typically include pulmonary function testing, a six-minute walk test, thoracic CT imaging, blood sampling, quality-of-life questionnaires, and documentation of medical history and medication use.
The aim of the database is to collect these data. Data from this unique population will contribute to research on the clinical phenotyping of severe COPD and support the improvement and further development of treatments for this patient group.
General Design
- Type
- Cohort study
- Cohort type
- Clinical cohort
- Data collection type
- Prospective
- Design
- Longitudinal
- Design description
- This databank has a observational, longitudinal design. Data collection will start when patients visit the UMCG for a second opinion visit and all available data afterwards will be collected.
- Start/End data collection
- 2019 (ongoing)
- PID
- https://doi.org/10.34760/69fc982bf05e5
Population
- Countries
- Netherlands (the)
- Regions
- Groningen
- Number of participants with samples
- 0
- Population age groups
- Adult (25-44 years), Middle-aged (45-64 years), Aged (65+ years)
- Main medical condition
- X Diseases of the respiratory system
- J40-J47 Chronic lower respiratory diseases
- J43 Emphysema
- J44.9 Chronic obstructive pulmonary disease, unspecified
- Inclusion criteria
- Defined population inclusion criterion
- Other inclusion criteria
- Patient with severe COPD who will visit the UMCG for a second opinion
Organisations
Lead organisations
- University Medical Center Groningen (UMCG)Netherlands (the)https://www.umcg.nl
Contributors
- dr. J.E.H. (Jorine) Hartmanj.hartman@umcg.nl
Primary contact, Data manager, Researcher, Project leader
Available Data & Samples
Areas of information
- Administrative information
- Date and time-related information
- Questionnaire and interview-related information
- Data and sample collection center-related information
- Socio-demographic and economic characteristics
- Age/birthdate
- Sex/gender
- Lifestyle and behaviours
- Tobacco
- Perception of health, quality of life, development and functional limitations
- Perception of health
- Quality of life
- Health outcomes
- Clinical measurements
- Clinical diagnoses
- Symptoms and signs
- Symptoms and signs involving the circulatory and respiratory systems (R00-R09)
- Medication and supplements
- Medication and supplement intake
- Non-pharmacological interventions
- Other and unspecified non-pharmacological interventions
- Health and community care services utilization
- Visits to health professionals
- Hospitalizations
- Death
- Vital status
- Physical measures and assessments
- Physical characteristics
- Circulation and respiration
- Laboratory measures
- Hematology
- Microbiology
- Cognition, personality and psychological measures and assessments
- Psychological distress and emotions
- Physical environment
- Geocodes for residential address
Subpopulations
List of subpopulations for this resource
| Name | Description | Number of participants | |
|---|---|---|---|
No results for current selection |
Collection events
List of collection events defined for this resource
| Name | Description | Participants | Start end year | |
|---|---|---|---|---|
No results for current selection |
Access conditions
Data are available on reasonable request
- Data access conditions
- disease specific research
- Data use conditions
- research specific restrictions
- collaboration required
- Data access fee
- false
- Release type
- Other release type
- Release description
- on request
Funding & Acknowledgements
- Funding
- No funding is obtained for this databank.