NAPPED
NAtural Course and Prognosis of PFIC and Effect of biliary Diversion...
Description
The NAPPED (NAtural course and Prognosis of PFIC and Effect of biliary Diversion) consortium is a large global initiative that compiles data on the natural history and outcomes of Progressive Familial Intrahepatic Cholestasis (PFIC), specifically inv...
General Design
- Type
- Registry
- Data collection type
- Retrospective, Prospective
- Design
- Longitudinal
- Start/End data collection
- not available
- PID
- https://doi.org/10.34760/65266a4dca14b
Population
- Countries
- United States of America (the), United Kingdom of Great Britain and Northern Ireland (the), United Arab Emirates (the), Turkey, Tunisia, Taiwan (Province of China), Sweden, Spain, Saudi Arabia, Portugal, Netherlands (the), Italy, India, Germany, France, Denmark, Colombia, China, Brazil, Belgium
- Number of participants
- 869
Organisations
Lead organisations
- University Medical Center Groningen (UMCG)Netherlands (the)https://www.umcg.nl
Additional organisations
- Erasmus MCNetherlands (the)https://www.erasmusmc.nl
Contributors
- prof. Bettina HansenErasmus MC
Principal Investigator
- prof. dr. H.J. (Henkjan) VerkadeUniversity Medical Center Groningenh.j.verkade@umcg.nl
Principal Investigator
Subpopulations
List of subpopulations for this resource...
| Name | Description | Number of participants | |
|---|---|---|---|
No results for current selection |
Collection events
List of collection events defined for this resource...
| Name | Description | Participants | Start end year | |
|---|---|---|---|---|
No results for current selection |