The Pulmolines cohort is the overarching cohort structure of the Groningen Research Institute for Asthma and COPD (GRIAC). The mission of GRIAC is the multidisciplinary translational study of obstructive airway and pulmonary diseases and healthy agei...
PULMOLINES - BREATH-NL
Bronchoscopic EmphysemA Treatment in THE NetherLands...
Description
Bronchoscopic lung volume reduction treatment in clinical practice: Introduction and implementation in The Netherlands and evaluation of a national database Data registry of patients who were treated with endobronchial valves with follow-up until 5 y...
General Design
- Type
- Registry
- Data collection type
- Prospective
- Design
- Longitudinal
- Design description
- Longitudinal data registry with 5 year follow-up after the lung volume reduction treatment with endobronchial valves.
- Start/End data collection
- 2017 (ongoing)
- PID
- https://doi.org/10.34760/65265dd8f2384
Population
- Countries
- Netherlands (the)
- Regions
- Limburg, Zuid-Holland, Noord-Holland, Groningen
- Number of participants
- 400
- Population age groups
- Middle-aged (45-64 years), Aged (65-79 years), Aged (80+ years)
- Main medical condition
- X Diseases of the respiratory system
- J40-J47 Chronic lower respiratory diseases
- J44 Other chronic obstructive pulmonary disease
- J44.0 Chronic obstructive pulmonary disease with acute lower respiratory infection
- J44.1 Chronic obstructive pulmonary disease with acute exacerbation, unspecified
- J44.8 Other specified chronic obstructive pulmonary disease
- J44.9 Chronic obstructive pulmonary disease, unspecified
- Other inclusion criteria
- Patient is scheduled for a bronchoscopic lung volume treatment using one-way valves.
Organisations
Lead organisations
- University Medical Center Groningen (UMCG)Netherlands (the)https://www.umcg.nl
Additional organisations
- Leiden University Medical Center (LUMC)Netherlands (the)https://www.lumc.nl
- Erasmus MCNetherlands (the)https://www.erasmusmc.nl
- Amsterdam University Medical CentersNetherlands (the)https://www.amsterdamumc.org
- Leiden University Medical Center (LUMC)Netherlands (the)https://www.lumc.nl
Contributors
- prof. dr. Dirk-Jan Slebosd.j.slebos@umcg.nl
Available Data & Samples
Data categories
- Survey data
- Imaging data
- Medical records
- Physiological/Biochemical measurements
Areas of information
- Administrative information
- Identifiers
- Date and time-related information
- Physical and cognitive measure and biosample-related information
- Data and sample collection center-related information
- Socio-demographic and economic characteristics
- Age/birthdate
- Sex/gender
- Lifestyle and behaviours
- Tobacco
- Perception of health, quality of life, development and functional limitations
- Quality of life
- Medication and supplements
- Medication and supplement intake
- Non-pharmacological interventions
- Other and unspecified non-pharmacological interventions
- Health and community care services utilization
- Hospitalizations
- Death
- Vital status
- Physical measures and assessments
- Physical characteristics
- Anthropometry
- Circulation and respiration
Subpopulations
List of subpopulations for this resource...
| Name | Description | Number of participants | |
|---|---|---|---|
No results for current selection |
Collection events
List of collection events defined for this resource...
| Name | Description | Participants | Start end year | |
|---|---|---|---|---|
No results for current selection |
Networks
Part of networks...
Access conditions
- Data access conditions
- health or medical or biomedical research
- disease specific research
- Data use conditions
- collaboration required
- Data access fee
- false
- Release type
- Closed dataset