PULMOLINES - BREATH-NL
Bronchoscopic EmphysemA Treatment in THE NetherLands...
Description
Bronchoscopic lung volume reduction treatment in clinical practice: Introduction and implementation in The Netherlands and evaluation of a national database Data registry of patients who were treated with endobronchial valves with follow-up until 5 y...
General Design
- Type
- Registry
- Data collection type
- Prospective
- Design
- Longitudinal
- Design description
- Longitudinal data registry with 5 year follow-up after the lung volume reduction treatment with endobronchial valves.
- Start/End data collection
- 2017 (ongoing)
- PID
- https://doi.org/10.34760/65265dd8f2384
Population
- Countries
- Netherlands (the)
- Regions
- Limburg, Zuid-Holland, Noord-Holland, Groningen
- Number of participants
- 400
- Population age groups
- Middle-aged (45-64 years), Aged (65-79 years), Aged (80+ years)
- Main medical condition
- X Diseases of the respiratory system
- J40-J47 Chronic lower respiratory diseases
- J44 Other chronic obstructive pulmonary disease
- J44.0 Chronic obstructive pulmonary disease with acute lower respiratory infection
- J44.1 Chronic obstructive pulmonary disease with acute exacerbation, unspecified
- J44.8 Other specified chronic obstructive pulmonary disease
- J44.9 Chronic obstructive pulmonary disease, unspecified
Organisations
Lead organisations
- University Medical Centre Groningen (UMCG)Netherlands (the)https://www.umcg.nl/
Additional organisations
- Amsterdam University Medical Centers - location AMC (Amsterdam UMC)Netherlands (the)https://www.amc.nl/
- Erasmus MC (EMC)Netherlands (the)https://www.erasmusmc.nl/
- Leiden University Medical Center (LUMC)https://www.lumc.nl/
- Maastricht Universitair Medisch Centrum Plus (MUMC+)Netherlands (the)https://www.mumc.nl/
Contributors
- dr. E. (Jorine) Hartmanj.hartman@umcg.nl
- prof. dr. Dirk-Jan Slebosd.j.slebos@umcg.nl
Available Data & Samples
Data categories
- Survey data
- Imaging data
- Medical records
- Physiological/Biochemical measurements
Areas of information
- Socio-demographic and economic characteristics
- Age/birthdate
- Sex/gender
- Lifestyle and behaviours
- Tobacco
- Perception of health, quality of life, development and functional limitations
- Quality of life
- Medication and supplements
- Medication and supplement intake
- Non-pharmacological interventions
- Other and unspecified non-pharmacological interventions
- Health and community care services utilization
- Hospitalizations
- Death
- Vital status
- Physical measures and assessments
- Physical characteristics
- Anthropometry
- Circulation and respiration
- Administrative information
- Identifiers
- Date and time-related information
- Physical and cognitive measure and biosample-related information
- Data and sample collection center-related information
Subpopulations
List of subpopulations for this resource...
| Name | Description | Number of participants |
|---|
Collection events
List of collection events defined for this resource...
| Name | Description | Participants | Start end year |
|---|
Networks
Part of networks...
Access conditions
- Data access conditions
- health or medical or biomedical research
- disease specific research
- Data use conditions
- collaboration required
- Data access fee
- false
- Release type
- Closed dataset