OncoLifeS

Oncology Life Study...

Description

We have established a hospital-based data-biobank, entitled OncoLifeS (Oncological Life Study: Living well as a cancer survivor) to link routinely collected clinical data with preserved biological specimens and quality of life assessments. The OncoLi...

General Design

Type
Cohort study
Data collection type
Retrospective, Prospective
Design
Longitudinal
Start/End data collection
2014 (ongoing)
Design paper
The OncoLifeS data-biobank for oncology: a comprehensive repository of clinical data, biological samples, and the patient's perspective
PID
https://doi.org/10.34760/5f5b7ff62dd52

Population

Countries
Netherlands (the)
Number of participants
10000
Number of participants with samples
6000
Population age groups
Adult (18+ years)
Main medical condition
  • II Neoplasms

Organisations

Lead organisations
Additional organisations

Contributors

  • prof. dr.  G.H. (Truuske) de BockUniversity Medical Centre Groningeng.h.de.bock@umcg.nl

    Principal Investigator

  • Janny NagelUniversity Medical Centre Groningenj.nagel@umcg.nl

    Primary contact

Available Data & Samples

Data categories

  • Biological samples
  • Survey data
  • Medical records

Sample categories

  • Blood
  • Fluids and Secretions
  • Genetic material
  • Tissue (FFPE)
  • Tissue (Frozen)

Areas of information

  • Socio-demographic and economic characteristics
  • Lifestyle and behaviours
  • Medication and supplements
  • Health and community care services utilization
  • Death
  • Laboratory measures
  • Preschool, school and work life

Subpopulations

List of subpopulations for this resource...

Collection events

List of collection events defined for this resource...

Networks

Part of networks...

Publications

Access conditions

Interested stakeholders can submit a research proposal OncoLifeS the coordinator of the OncoLifeS data-biobank and the involved tumor working group. The OncoLifeS scientific advisory board, which comprises representatives of each participating tumor ...

Data access conditions
  • health or medical or biomedical research
  • disease specific research
Data use conditions
  • research specific restrictions
  • publication required
  • collaboration required
  • ethics approval required
  • project specific restriction
  • return to database or resource
Release type
Closed dataset
Release description
The data is handed over following the requested variables. There is the possibility to add data to the OncoLifeS data.
Linkage options
There is consent for linking with various databases and registers, for example general practitioners, pharmacy, Palga, Lifelines, IKNL.

Documentation