GeneticLines

GeneticLines biobank...

Description

GeneticLines has been set up to enable scientific research for genetic disorders...

General Design

Type
Biobank
Data collection type
Prospective
Design
Cross-sectional
Design description
Patients are requested to participate in the biobank when they have their first consultation with the geneticist. After written informed consent they are included
Design schematic
Design schematic
Start/End data collection
2021 (ongoing)
PID
https://doi.org/10.34760/65266583ddcd7

Population

Countries
Netherlands (the)
Regions
Overijssel, Drenthe, Friesland, Groningen
Number of participants
100
Number of participants with samples
100
Population age groups
Adolescent (13-17 years), Adult (18+ years)

Organisations

Lead organisations

Contributors

Available Data & Samples

Data categories

  • Biological samples
  • Medical records
  • Omics

Sample categories

  • Blood
  • Genetic material

Areas of information

  • Socio-demographic and economic characteristics
  • Non-pharmacological interventions
  • Death
  • Laboratory measures
  • Administrative information

Subpopulations

List of subpopulations for this resource...

Collection events

List of collection events defined for this resource...

Access conditions

There is a access form that needs to be filled in. The steering committee will decide wether access will be granted or not....

Data access conditions
general research use

Funding & Acknowledgements

Funding
N.A.