PULMOLINES - BREATH-NL
Bronchoscopic EmphysemA Treatment in THE NetherLands...
Description
Bronchoscopic lung volume reduction treatment in clinical practice: Introduction and implementation in The Netherlands and evaluation of a national database Data registry of patients who were treated with endobronchial valves with follow-up until 5 y...
General Design
- Cohort type
Registry
- Design
Longitudinal
- Design description
Longitudinal data registry with 5 year follow-up after the lung volume reduction treatment with endobronchial valves.
- Collection type
Prospective
- Start/End year
2017 - ongoing
- PID
https://doi.org/10.34760/65265dd8f2384
Population
- Countries
Netherlands (the)
- Regions
Limburg, Zuid-Holland, Noord-Holland, Groningen
- Number of participants
400
- Population age groups
Middle-aged (45-64 years), Aged (65-79 years), Aged (80+ years)
- Main medical condition
- X Diseases of the respiratory system
- J40-J47 Chronic lower respiratory diseases
- J44 Other chronic obstructive pulmonary disease
- J44.0 Chronic obstructive pulmonary disease with acute lower respiratory infection
- J44.1 Chronic obstructive pulmonary disease with acute exacerbation, unspecified
- J44.8 Other specified chronic obstructive pulmonary disease
- J44.9 Chronic obstructive pulmonary disease, unspecified
Contributors
- dr. E. (Jorine) Hartmanj.hartman@umcg.nl
- prof. dr. Dirk-Jan Slebosd.j.slebos@umcg.nl
Additional organisations
- Erasmus MC
- Amsterdam University Medical Centers - location AMC
- Maastricht Universitair Medisch Centrum Plus
- Leiden University Medical Center
Available Data & Samples
Data categories
- Survey data
- Imaging data
- Medical records
- Physiological/Biochemical measurements
Areas of information
- Socio-demographic and economic characteristics
- Age/birthdate
- Sex/gender
- Health and community care services utilization
- Hospitalizations
- Lifestyle and behaviours
- Tobacco
- Perception of health, quality of life, development and functional limitations
- Quality of life
- Medication and supplements
- Medication and supplement intake
- Non-pharmacological interventions
- Other and unspecified non-pharmacological interventions
- Death
- Vital status
- Physical measures and assessments
- Physical characteristics
- Anthropometry
- Circulation and respiration
- Administrative information
- Identifiers
- Date and time-related information
- Physical and cognitive measure and biosample-related information
- Data and sample collection center-related information
Subpopulations
List of subcohorts or subpopulations for this resource...
| Name | Description | Number of participants |
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Collection events
List of collection events defined for this resource...
| Name | Description | Participants | Start end year |
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Partners
Networks
List of networks in which this cohort is involved...
Access conditions
- Data access conditions
- health or medical or biomedical research
- disease specific research
- Data use conditions
- collaboration required
- Release type
- Closed dataset