IMMUNOLINES - Parelsnoer IBD
Parelsnoer Inflammatoire Darmziekten...
Description
National biobank to facilitate clinically relevant multi-omics research in patients with IBD. Inflammatory Bowel Diseases (IBD) are diseases characterized by inflammation of the gastrointestinal tract, including Crohn’s disease and ulcerative colit...
General Design
- Type
- Cohort study
- Cohort type
- Clinical cohort
- Data collection type
- Prospective
- Design
- Longitudinal
- Design description
- Prospective cohort and biobank, including patients treated for their IBD at participating university hospitals in the Netherlands, and the UMCG especially.
- Start/End data collection
- 2009 (ongoing)
- Design papers
- PID
- https://doi.org/10.34760/5f5b80549e891
Population
- Countries
- Netherlands (the)
- Number of participants
- 1200
- Number of participants with samples
- 1200
- Population age groups
- Adult (18+ years)
Organisations
Lead organisations
- Initiative on Crohn and Colitis https://icc-ibd.com
- University Medical Centre Groningen (UMCG)Netherlands (the)https://www.umcg.nl/
Additional organisations
- HealthRI https://www.health-ri.nl/
Contributors
Available Data & Samples
Data categories
- Biological samples
- Survey data
- Imaging data
- Medical records
- National registries
- Physiological/Biochemical measurements
- Omics
- Genomics
- Transcriptomics
- Proteomics
- Metabolomics
Sample categories
- Blood
- Blood (whole)
- Blood Buffy Coat
- Fetal blood (Cord blood)
- Plasma
- Serum
- Cells
- Fibroblasts
- Fluids and Secretions
- Feces
- Urine
- 24h urine
- Urine, first morning
- Urine, random
- Urine, timed
- Genetic material
- DNA
- DNA, Mitochondrial
- RNA
- Tissue (FFPE)
- Digestive System - Tissue (FFPE)
- Esophagus - Tissue (FFPE)
- Gallbladder - Tissue (FFPE)
- Intestine, Large - Tissue (FFPE)
- Intestine, Small - Tissue (FFPE)
- Liver - Tissue (FFPE)
- Lower Gastrointestinal Tract - Tissue (FFPE)
- Mesentery - Tissue (FFPE)
- Mouth - Tissue (FFPE)
- Pancreas - Tissue (FFPE)
- Pharynx - Tissue (FFPE)
- Rectum - Tissue (FFPE)
- Salivary Glands - Tissue (FFPE)
- Stomach - Tissue (FFPE)
- Tissue (Organoïds)
- Digestive System - Tissue (Organoïds)
- Esophagus - Tissue (Organoïds)
- Gallbladder - Tissue (Organoïds)
- Intestine, Large - Tissue (Organoïds)
- Intestine, Small - Tissue (Organoïds)
- Liver - Tissue (Organoïds)
- Lower Gastrointestinal Tract - Tissue (Organoïds)
- Mesentery - Tissue (Organoïds)
- Mouth - Tissue (Organoïds)
- Pancreas - Tissue (Organoïds)
- Pharynx - Tissue (Organoïds)
- Rectum - Tissue (Organoïds)
- Salivary Glands - Tissue (Organoïds)
- Stomach - Tissue (Organoïds)
Areas of information
- Socio-demographic and economic characteristics
- Age/birthdate
- Sex/gender
- Twin
- Marital/partner status
- Family and household structure
- Education
- Residence
- Birthplace
- Citizenship and immigrant status
- Ethnicity, race and religion
- Language
- Labour force and retirement
- Income, possessions, and benefits
- Other socio-demographic and economic characteristics
- Lifestyle and behaviours
- Tobacco
- Alcohol
- Drugs
- Nutrition
- Breastfeeding
- Physical activity
- Transportation
- Personal hygiene
- Sleep
- Sexual behaviours and orientation
- Leisure activities
- Technological devices
- Misbehaviour and criminality
- Other and unspecified lifestyle information
- Birth, pregnancy and reproductive health history
- Puberty, menstruation, menopause and andropause
- Contraception
- Pregnancy, delivery and birth
- Fertility and sexual health
- Other reproductive health-related information
- Perception of health, quality of life, development and functional limitations
- Perception of health
- Quality of life
- Life course development
- Functional limitations
- Use of assistive devices
- Other perception of health, quality of life and functional limitation-related information
- Medication and supplements
- Medication and supplement intake
- Chemotherapy interventions
- Posology and protocol of administration
- Other and unspecified pharmacological interventions
- Non-pharmacological interventions
- Surgical interventions
- Radiological interventions
- Radiotherapy interventions
- Physical therapy interventions
- Cognitive, psychological and sensory interventions
- Educational and health promotion interventions
- Laboratory diagnosis interventions
- Other and unspecified non-pharmacological interventions
- Health and community care services utilization
- Visits to health professionals
- Hospitalizations
- Community and social care
- Other health and community care
- Death
- Vital status
- Cause of death
- Other end of life or death-related information
- Physical measures and assessments
- Physical characteristics
- Anthropometry
- Circulation and respiration
- Muscles, skeleton and mobility
- Sensory and pain
- Brain and nerves
- Skin and subcutaneous tissue
- Speech and voice
- Digestion
- Reproduction
- Other physical measures and assessments
- Laboratory measures
- Hematology
- Biochemistry
- Microbiology
- Virology
- Immunology
- Toxicology
- Histology
- Genomics
- Other laboratory measures
- Cognition, personality and psychological measures and assessments
- Cognitive functioning
- Personality
- Psychological distress and emotions
- Other psychological measures and assessments
- Life events, life plans, beliefs and values
- Life events
- Life plans
- Beliefs and values
- Other life events, plans and beliefs
- Preschool, school and work life
- Preschool life
- School life
- Work life
- Other preschool, school or work life-related information
- Social environment and relationships
- Social network
- Social participation
- Social support
- Parenting and familial environment
- Other social environment characteristics
- Physical environment
- Housing characteristics
- Built environment/neighbourhood characteristics
- Workplace characteristics
- Radiation exposure
- Chemical exposure
- Biological exposure
- Other physical environment characteristics
Subpopulations
List of subpopulations for this resource...
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Collection events
List of collection events defined for this resource...
| Name | Description | Participants | Start end year |
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Networks
Part of networks...
Publications
Access conditions
- Data access conditions
- no restriction
- Data use conditions
- collaboration required
- ethics approval required
- Data access fee
- false
- Linkage options
- PALGA, Lifelines