Eurocat
Eurocat Northern Netherlands
Description
Eurocat NNL is a population-based congenital anomaly registry covering Groningen, Friesland and Drenthe from 1981 onwards. All pregnancy outcomes are covered and information is collected on genetic testing, prenatal diagnosis and risk factors via parental questionnaires, medical records and pharmacy data.
General Design
Data is collected since 1981, but since 1992 parental consent is needed for registration. Since 1997 information is also obtained via parental questionnaires and pharmacy data. Since 2010, information on non responders is also registered.
- Cohort type
Population cohort, Case only, Registry
- Design
Cross-sectional
- Design description
Data is collected since 1981, but since 1992 parental consent is needed for registration. Since 1997 information is also obtained via parental questionnaires and pharmacy data. Since 2010, information on non responders is also registered.
- Collection type
Retrospective
- Start/End year
1981 - ongoing
- Population
Netherlands (the)
- Regions
Drenthe, Friesland, Groningen
- Number of participants
19000
- Number of participants with samples
0
- Age group at inclusion
Infant (0-23 months), Child (2-12 years)
- Inclusion criteria
Children and foetuses with congenital anomalies diagnosed before or after birth are eligible for registration at the Eurocat NNL registry, if the mother lived in Groningen, Friesland or Drenthe at the time of birth and the child is not older than 10 at notification. There is no lower limit for gestational age, spontaneous and induced abortions are included.
Attached Files
Documents
Contact and Contributors
- dr.HEK (Hermien) de Walleh.e.k.de.walle@umcg.nl
- dr.MK (Marian) Bakkerm.k.bakker@umcg.nl
- dr.JEH (Jorieke) van Kammen-Bergmanj.e.h.van.kammen@umcg.nl
Available Data & Samples
Data categories
- Survey data
- Medical records
- Other
Areas of information
- Socio-demographic and economic characteristics
- Age/birthdate
- Sex/gender
- Twin
- Residence
- Birthplace
- Education
- Labour force and retirement
- Non-pharmacological interventions
- Surgical interventions
- Radiological interventions
- Radiotherapy interventions
- Death
- Vital status
- Physical measures and assessments
- Physical characteristics
- Anthropometry
- Circulation and respiration
- Muscles, skeleton and mobility
- Sensory and pain
- Brain and nerves
- Skin and subcutaneous tissue
- Other physical measures and assessments
- Cognition, personality and psychological measures and assessments
- Cognitive functioning
- Administrative information
- Identifiers
- Questionnaire and interview-related information
- Date and time-related information
- Other administrative information
- Lifestyle and behaviours
- Tobacco
- Alcohol
- Drugs
- Other and unspecified lifestyle information
- Medication and supplements
- Medication and supplement intake
- Birth, pregnancy and reproductive health history
- Pregnancy, delivery and birth
- Fertility and sexual health
Subpopulations
List of subcohorts or subpopulations for this resource
| Name | Description | Number of participants |
|---|
Collection events
List of collection events defined for this resource
| Name | Description | Participants | Start end year |
|---|
Networks
Networks Explanation about networks from this cohort and the functionality seen here.
Access conditions
- Conditions
disease specific research
Funding & Citation requirements
- Funding
Eurocat NNL is funded by the Netherlands Ministry of Public Health, Welfare and Sports (VWS)
- Citation requirements
VWS should be acknowledged, as well as the parents and children who agreed to have their data registered in the EUROCAT NNL database.