CONDOR
CONsortium for Dural arteriovenous fistula Outcomes Research / Database Durale Arterioveneuze Fistels...
Description
A repository of individual patient data on patients with dural arteriovenous fistulas (“dAVF”)...
General Design
- Type
- Cohort study
- Cohort type
- Clinical cohort
- Data collection type
- Retrospective
- Design
- Longitudinal
- Start/End data collection
- 1990 (ongoing)
- PID
- https://doi.org/10.34760/65265f14c9548
Population
- Countries
- Japan, Netherlands (the), United States of America (the), United Kingdom of Great Britain and Northern Ireland (the)
- Regions
- Drenthe, Friesland, Groningen
- Number of participants
- 100
- Number of participants with samples
- 0
- Population age groups
- Adult (18+ years)
- Main medical condition
- IX Diseases of the circulatory system
- I70-I79 Diseases of arteries, arterioles and capillaries
- I77.0 Other disorders of arteries and arterioles - Arteriovenous fistula, acquired
- Other inclusion criteria
- All patients with angiography-confirmed dural arteriovenous fistulas diagnosed at the UMCG from 1990 to the present
Organisations
Lead organisations
- University Medical Centre Groningen (UMCG)Netherlands (the)https://www.umcg.nl/
Available Data & Samples
Data categories
- Imaging data
- Medical records
Areas of information
- Socio-demographic and economic characteristics
- Age/birthdate
- Sex/gender
- Ethnicity, race and religion
- Lifestyle and behaviours
- Tobacco
- Medication and supplements
- Medication and supplement intake
- Non-pharmacological interventions
- Surgical interventions
- Radiological interventions
- Radiotherapy interventions
- Death
- Cause of death
- Physical measures and assessments
- Physical characteristics
- Brain and nerves
Subpopulations
List of subpopulations for this resource...
Name | Description | Number of participants |
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Collection events
List of collection events defined for this resource...
Name | Description | Participants | Start end year |
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Access conditions
- Data access conditions
- disease specific research
- Data use conditions
- ethics approval required
- project specific restriction
- Data access fee
- false
- Release type
- Closed dataset