CONDOR

CONsortium for Dural arteriovenous fistula Outcomes Research / Database Durale Arterioveneuze Fistels...

Description

A repository of individual patient data on patients with dural arteriovenous fistulas (“dAVF”)...

General Design

Type
Cohort study
Cohort type
Clinical cohort
Data collection type
Retrospective
Design
Longitudinal
Start/End data collection
1990 (ongoing)
PID
https://doi.org/10.34760/65265f14c9548

Population

Countries
Japan, Netherlands (the), United States of America (the), United Kingdom of Great Britain and Northern Ireland (the)
Regions
Drenthe, Friesland, Groningen
Number of participants
100
Number of participants with samples
0
Population age groups
Adult (18+ years)
Main medical condition
  • IX Diseases of the circulatory system
Other inclusion criteria
All patients with angiography-confirmed dural arteriovenous fistulas diagnosed at the UMCG from 1990 to the present

Organisations

Lead organisations

Available Data & Samples

Data categories

  • Imaging data
  • Medical records

Areas of information

  • Socio-demographic and economic characteristics
  • Lifestyle and behaviours
  • Medication and supplements
  • Non-pharmacological interventions
  • Death
  • Physical measures and assessments

Subpopulations

List of subpopulations for this resource...

Collection events

List of collection events defined for this resource...

Access conditions

Data access conditions
disease specific research
Data use conditions
  • ethics approval required
  • project specific restriction
Data access fee
false
Release type
Closed dataset