TransplantLines

TransplantLines Biobank and Cohort Study...

Description

Prospective biobank and cohort study aimed to improve health after organ transplantation and donation. Next to biomaterial collection, the study focuses on physical and cognitive functioning and patient-reported outcome measures, such as quality of l...

General Design

Type
Biobank, Cohort study
Cohort type
Clinical cohort
Data collection type
Retrospective, Prospective
Design
Longitudinal
Design description
More than 3,500 participants (transplant recipients and living kidney/liver donors) were included, but inclusion is ongoing. Depending on time of enrollment, patients have only one study visit, or multiple visits before and after transplantation.
Design schematic
Design schematic
Start/End data collection
2015 (ongoing)
Design paper
Rationale and design of TransplantLines: a prospective cohort study and biobank of solid organ transplant recipients
PID
https://doi.org/10.34760/5f5b80abd0b30

Population

Countries
Netherlands (the)
Number of participants
3500
Number of participants with samples
3500
Population age groups
Adult (18+ years)
Main medical condition
  • IV Endocrine, nutritional and metabolic diseases
  • IX Diseases of the circulatory system
  • X Diseases of the respiratory system
  • XI Diseases of the digestive system
  • XIV Diseases of the genitourinary system

Organisations

Lead organisations

Contributors

Available Data & Samples

Sample categories

  • Blood
  • Fluids and Secretions
  • Genetic material
  • Tissue (FFPE)
  • Tissue (Frozen)

Areas of information

  • Socio-demographic and economic characteristics
  • Lifestyle and behaviours
  • Perception of health, quality of life, development and functional limitations
  • Medication and supplements
  • Death
  • Laboratory measures
  • Cognition, personality and psychological measures and assessments
  • Social environment and relationships
  • Administrative information

Subpopulations

List of subpopulations for this resource...

Collection events

List of collection events defined for this resource...

Publications

Access conditions

A data and sample request form can be obtained by sending an e-mail to datarequest.transplantlines@umcg.nl. The completed form can be returned to datarequest.transplantlines@umcg.nl, after which the request will be approved or rejected based on scien...

Data access conditions
  • health or medical or biomedical research
  • disease specific research
Data use conditions
  • collaboration required
  • user specific restriction
  • project specific restriction
  • return to database or resource
Data access fee
false
Release type
Continuous
Linkage options
NITRA, NOTR, PALGA, among others. We are continuously working to increase the linkage options with additional data sources.

Funding & Acknowledgements

Funding
The TransplantLines Biobank and Cohort Study was supported by unrestricted grants from Astellas BV and Chiesi Pharmaceuticals BV. In addition, this collaboration project is co-financed by the Dutch Ministry of Economic Affairs and Climate Policy by means of the PPP-allowance made available by the Top Sector Life Sciences & Health to stimulate public-private partnerships.