CONDOR

CONsortium for Dural arteriovenous fistula Outcomes Research / Database Durale Arterioveneuze Fistels...

Description

A repository of individual patient data on patients with dural arteriovenous fistulas (“dAVF”)...

General Design

Cohort type

Clinical cohort

Design

Longitudinal

Collection type

Retrospective

Start/End year

1990 - ongoing

PID

https://doi.org/10.34760/65265f14c9548

Population

Countries

United States of America (the), United Kingdom of Great Britain and Northern Ireland (the), Netherlands (the), Japan

Regions

Drenthe, Friesland, Groningen

Number of participants

100

Number of participants with samples

0

Age group at inclusion

Adult (18+ years)

Main medical condition
  • IX Diseases of the circulatory system

Contact and Contributors

Lead organisation

  • University Medical Centre Groningen

Contacts

Available Data & Samples

Data categories

  • Imaging data
  • Medical records

Areas of information

  • Socio-demographic and economic characteristics
  • Lifestyle and behaviours
  • Medication and supplements
  • Non-pharmacological interventions
  • Death
  • Physical measures and assessments

Subpopulations

List of subcohorts or subpopulations for this resource...

Collection events

List of collection events defined for this resource...

Access conditions

Data access conditions

disease specific research

Data use conditions
  • ethics approval required
  • project specific restriction
Release type
  • Closed dataset