IMPORTANCE

Implications of Positive Airway Pressure and Home Mechanical Ventilation: TowArds optimal patient CarE...

Description

The IMPORTANCE initiative aims to improve care for patients with sleep disordered breathing (SDB) and chronic respiratory failure (CRF) who require long-term respiratory support, i.e. positive airway pressure (PAP), home mechanical ventilation (HMV) ...

General Design

Type
Cohort study, Registry
Cohort type
Clinical cohort
Data collection type
Prospective
Design
Longitudinal
Design description
Longitudinal cohort started at the moment the patient is started on long-term respiratory support (HMV/PAP/nHFT) and continues to final follow-up when the patients stops the treatment.
Design schematic
Design schematic
Start/End data collection
2025 (ongoing)
Design paper
ERS “IMPORTANCE” Clinical Research Collaboration: Implications of Positive Airway Pressure and Home Mechanical Ventilation: TowArds optimal patient CarE
PID
https://doi.org/10.34760/686e3d46f1be3

Population

Countries
United Kingdom of Great Britain and Northern Ireland (the), Switzerland, Sweden, Slovenia, Portugal, Netherlands (the), Latvia, Italy, Greece, Germany, Finland, Croatia, Belgium
Population age groups
All ages
Main medical condition
  • IV Endocrine, nutritional and metabolic diseases
  • VI Diseases of the nervous system
  • IX Diseases of the circulatory system
  • X Diseases of the respiratory system
  • XIII Diseases of the musculoskeletal system and connective tissue
  • XVII Congenital malformations, deformations and chromosomal abnormalities
Inclusion criteria
Hospital patient inclusion criterion
Other inclusion criteria
All patients patients with sleep disordered breathing (SDB) and chronic respiratory failure (CRF) who are newly imitated on long-term respiratory support, i.e. positive airway pressure (PAP), home mechanical ventilation (HMV) or home nasal high-flow therapy (nHFT).

Organisations

Lead organisations
  • University Medical Center Groningen (UMCG)
    Netherlands (the)
    https://www.umcg.nl

    Data originator, Data holder, Data provider, Researcher, Surveillance, Data access provider

Additional organisations

Contributors

Available Data & Samples

Data categories

Medical records

Subpopulations

List of subpopulations for this resource...

No results for current selection

Collection events

List of collection events defined for this resource...

No results for current selection

Publications

ERS “IMPORTANCE” Clinical Research Collaboration: Implications of Positive Airway Pressure and Home Mechanical Ventilation: TowArds optimal patient CarE

Access conditions

All access to data within the IMPORTANCE databank must comply with applicable national and international data protection legislation, including the EU General Data Protection Regulation (GDPR), and must respect the scope of participants' informed con...

Data access conditions
  • general research use
  • health or medical or biomedical research
Data use conditions
  • collaboration required
  • ethics approval required
Release type
Continuous
Release description
All released data will be pseudonymised prior to upload into the REDCap database hosted by UMCG. Identifiable patient data will never be released.
Linkage options
https://europeanlung.org/importance/

Funding & Acknowledgements

Funding
This Clinical Research Collaboration is funded by the European Respiratory Society (ERS) and is co-funded by the Transforming Health and Care Systems (THCS).

Created with MOLGENIS